Healing, It Hurts

When someone with a chronic illness glimpses remission, It's sort of like what most people would expect- a super joyous, exciting and wonderful feeling that, for an instant, washes away any terrifying thought of what it had been like to be sick and waiting for such a day. Some sickies wait years for this feeling, stuck beneath the rest of the world, and I myself am no stranger to it. But what's it like when you're actually in the thick of healing? When you hit the layer of dirt jusssst beneath where the sun shines on the surface? 

Some unlucky and very brave individuals know that there's a roller coaster jammed into that layer. And a tilt-a-whirl. And I can't tell you how many other suspiciously, unsafe-looking pieces of crap machinery there are, meant to confuse the fuck out of anyone on their way back up. 

Fortunately, there are ways to cope with this ridiculously bogus and unfair part of healing. But, it still hurts. You find yourself again when you're body is better, but what no one tells you, is that if you've been sick for an extended period of time, that person you've been waiting to meet again quite possibly may have never ditched his or her unsavory character flaws or deep-seeded issues. Fighting the good [sick] fight turns any wimp into a stallion, but if there were things in there like emotional or psychological issues that were never addressed, the person in the mirror looks less like your old self, and much more like a rhinoceros. I'm not sure why I used rhinoceros there, another part of healing is growing back into your brain's comfy cognition. Never mind the slough of issues that had developed while you were sick. So, what's the best way to heal with your bad self while navigating through your new and exciting life?

Let's start with a basic How-To:

[Unfortunately for you, I never tire of these]

Be Up Front

When you can't remember making plans with friends, or even to be in contact with them, or that you were supposed to keep someone's pregnancy a secret, or you forgot your Goddaughter's birthday, or you went ahead and cried into your pizza for no good reason in front of a bunch of townies at a favorite dive bar and totally freaked out your dude, or that you know you'll DEFINITELY not be participating in any of these online challenges, SAMANTHA, be honest with the people around you regarding why. Staying home and crying to your Puffins cereal is VERY okay. Just make sure you're getting the point across that you care. And you know, write things down once in a while. 

Know When to Call It

Think you might be too emotional about seeing people that you used to, or attending a party similar to those before you were sick, or that you're just not feeling a snug sesh with your ladyfriend or fella? Say so. If these people are worth their salt, they'll attempt to practice understanding, and you won't end up in a ball on the floor three hours later, regretting you left your house.

Apologize for Hiding

Remission means an ebb and flow to how comfortable you are around others. Some days, I just can't do much more than lay around and reflect on how different my life has become in the last year, since reaching remission. Yes, I'm sob/laughing and having full-blown conversations with my dog/ pain management specialist. For me, sometimes that's just necessary to getting through those moments. 

Apologize to [and forgive] Yourself

This is your own. 

But I choose Kung Fu and those orange gummies with the terrible sugary coating. 

When You Need Help, GET HELP 

Save us the time here and just do it, please. It'll be spotty, and you'll blow it off because remembering is painful. But the only way through it, is THROUGH it. Personally, I've been exploring what it's like to have never been diagnosed with a fierce case of ADD. Turns out all of those "attempts" at things make a whole lot more sense, and I'll be better for even trying to understand why. Countless apologies and my incessant thoughts of unwished happiness for wonderful occasions, unfinished collaborations, and never-done favors are something that I'd like to extend to so many people that I care about. 

I sometimes want to tell people who I know are sick, that the journey is so much more than reaching the point that I've gotten to. I understand that communicating something like this should, and does, come with such deep feeling for every individual's experience here. Crohn's Disease both ruined, and saved parts of me. I couldn't be the woman I am right now if I never got sick. I don't regret or hold bitterness for my body. Letting go of that has made this journey much lighter, but I am, and will be continuing uphill for probably longer than I'm anticipating or giving credit for. I can't give much more advice on how to move faster or lessen the load, as I'm still figuring it out. I just want anyone else in the same place on the trail to know that they're not alone. 

If I May

Since it's gotten nicer and nicer outside, and the sun has given me more happiness than I've had in quite some time, I'm in a super excited and silly place. There are so many people wearing flip flops and dresses in the city, so many smiling couples and pups out with families in this awesome weather. It seems as though the fresh breeze is carrying bits of happy around and letting it fall on us just when we each really need it. And it's about damn time.

After the bombing last month during our beloved Boston Marathon, there's been a stillness in the city. People have been unsure of how relaxed to let themselves become. Though we've given a sigh of relief after suspects were caught or killed, we still hurt for what happened... and many people question the tragedy. There are tons of unreliable sources spewing what they think we should believe through the sharing of their websites and photographs. It's maddening. I think we deserve some beautiful freaking weather, and a fresh season.

But there is one absolutely terrifying thing about this month.

May is National Irritable Bowel Disease Awareness Month. That's actually wonderful- far from terrifying. But it's the month that I, along with countless others, was initially diagnosed with Crohn's Disease. The change of seasons can wreak havoc on an autoimmune disease, and many people start to flare when the weather gets nicer. It's a crap shoot, but it's our job to try and find things to be happy about everyday. If we don't, we run the risk of getting sick and becoming super miserable. The positive vibes you give yourself are in direct correlation with how good you feel.

If you've got blood running through your veins, you've got the opportunity to make your time on this planet worth something. Even if you're sick. Especially if you're sick.

Make a plan.
Show your teeth.
Grab happiness by the nape of it's neck, and make it your own.

Sometimes even a well-deserved, gorgeous new start is scary. The truth is, people with a lifetime sickness never stop working. Ever. Being on your toes is something that becomes second nature, but can hurt... so we've got to make sure that we're well-rounded in our activity, knowledgeable of our conditions, and willing to sacrifice a lot of things that mean very much to us. At least, for the next few months anyway, we can fight, fight, fight with our toes in the sand and our faces in the sunlight.

You can turn a shitty situation into an opportunity to help others. And to help yourself.
Every moment is what you make it. 

Don't ever let a doctor tell you otherwise.

You've Come A Long Way, Baby

Stale Cabbage is my baby. 

This is our 200th post.

It may have taken a while to get here [almost two years!], but I couldn't be happier with the progress. Through this blog I've been able to talk about everything that I've discovered within myself, learned about the amazing city that I live in and am inspired by everyday, and all that I've endured through Crohn's therapy. 

Thanks for listening to all of my crap. 

With great friends and family, strong faith, and a little luck...

 I battled through a sickness that almost killed me.

And I talked about it with anyone who would listen.

[Sorry & Thanks.]

Because of that sickness, I developed a better relationship with food.

I started a group for other people in Boston and surrounding areas with 

Crohn's Disease and Ulcerative Colitis who can't eat pizza on the reg. The rest of you really piss me off.

I stopped to listen, absorbing everything that I could from amazing and influential people.

And I learned that networking isn't such a scary thing. 

Put yourself out there, you'll be super happy you did.

I discovered what a great friend I truly have in my Mama.

[truly.]

I lost my apartment, jobs, and most of my friends when I got sick.

I also found that I could turn that around, and felt warmth in rebuilding what was taken.

I launched what I hope to someday call an amazing career.

[first type.]

I'm still learning to drive cars with manual transmissions.

[Hey, we're not all perfect]

I met the love of my life.

I think he even saved it once or twice.

And I continue to learn patience and understanding as I watch him on the road.

[Some new pals don't hurt during these times, either...]

 It takes an immeasurable amount of dedication to keep sane and happy after nearly coming back from the dead. I don't generally pride myself in stick-to-it-iveness, but after knowing the courage it takes to pull yourself together the way I've had to, I'm proud of my ideas, powerful emotion, and strength of character. Illness isn't something that many people understand, and I wouldn't blame most of you if you didn't think as highly as I do about the things that I've done. But I will say this: Most people are walking around with something you'll never relate to, that you're heart will never, ever touch.

Practice understanding, mindfulness, and relentless respect for those around you. The relationships that we create in this life are golden. Caring for others, even in moments when all you want to do is throw a microwave in their direction, is absolutely imperative. 

I can go on and say that without everyone I know, I wouldn't have been able to find remission and stability in my life. But... I'd be lying. The people that I love have helped me [a great, great deal], but if I didn't learn to love myself, I would still be lightyears behind. Heaps of that discovery came as I wrote this blog. Post by post, I continued to learn more about myself. I also got a free, first-look at how I fair at practicing what I preach. For other sick people, I cannot say these next few lines enough- Spend time learning yourself. Take advantage of your down time by learning everything you can about what ails you. Talk to family and friends to make sure that they're on the know about what's going on with you, and never, EVER be afraid to ask questions within your medical community. You ARE one of your doctors. 

After realizing that what you know can save your life, you'll never want to stop learning. That curiosity will continue for the rest of your life- if you're lucky. Don't push your body away.

It's your best friend.

I love mine.

I hope you love yours, too.

Take Time To Make Time

I'm learning, a lot later than most I'm sure, just how valuable the time I spend alone can be. I like venturing out on my own, having date days with myself, and taking time to think about what truly makes me happy. I haven't been able to reflect as clearly through these roughest parts of my sickness, and it's kept me from learning myself. Maybe I more was focused on being silly, trying not to let myself get too serious because I was secretly very scared of my disease. I kind of felt I didn't need to know more than that just then.

 Shutting down other areas of my life because something I'm 

dealing with is tough? Preposterous. Those neglected little parts really suffer! I'll

 never let that happen again.

Coming out of a terribly rough patch in health [or really any harder life situation that sets you back], you rediscover new things about your personal tastes. A lot of things. It feels pretty amazing.

Turns out, I really like reading. I never put time into learning new things when I was younger. I was way too interested in what movies were coming out, and what Britney Spears wore to the VMAs. Supah lame. These days, gimme anything and I'll read it.

I'm too sexy [slash, not sexy enough] for my hat. Or my jacket. Or my left shoe. I was never really a fashion forward type gal. Comfy sweats or hoodies did me very well. Now that I'm a little older, and have had oodles of time to blogstalk fashion writers, I'm really interested in trying to recreate what I see, but on a sickie's budget.

Keiko Lynn is a personal fav.

I also discovered that I really enjoy crossword puzzles. Go on and make fun of me. Pfft. 

I LOVE MUSIC. 

Live music is wonderful, and I had the chance to see a really great show last weekend. Well, most of a show. I was spent by the third quarter and had to head home... But getting out and being part of a live music experience is something that I forgot meant so, so much to me.

Have you heard of Jason Anderson?? His shows are so intimate, so lovely... He draws you in and forces you to participate by clapping, singing along, and is quick with a joke or two. Simply awesome.

Exploring is fantastic! I've had more energy lately to see the parts of Boston that I hadn't yet invested time in, and so far, I love it. I am proud to live here. So many medical and technological advances have been made here, among tons of other cool historical happenings.  I'm excited to know that there's even more to learn about in pretty much any part of this city.

We took a Duck Tour through Boston last weekend! 

Okay, so I wasn't alone. But a lovely date day was needed, and we had a blast! ;D

 I know now just how much it's worth to hear my own voice, and I hope you do, too. Even if you're tone def, it feels good to get loud sometimes.  Your friends will understand. I don't see any of them on American Idol.

Zing.