Showing posts with label strength. Show all posts
Showing posts with label strength. Show all posts

Sunday, September 7, 2014

Healing, It Hurts


When someone with a chronic illness glimpses remission, It's sort of like what most people would expect- a super joyous, exciting and wonderful feeling that, for an instant, washes away any terrifying thought of what it had been like to be sick and waiting for such a day. Some sickies wait years for this feeling, stuck beneath the rest of the world, and I myself am no stranger to it. But what's it like when you're actually in the thick of healing? When you hit the layer of dirt jusssst beneath where the sun shines on the surface? 

Some unlucky and very brave individuals know that there's a roller coaster jammed into that layer. And a tilt-a-whirl. And I can't tell you how many other suspiciously, unsafe-looking pieces of crap machinery there are, meant to confuse the fuck out of anyone on their way back up. 

Fortunately, there are ways to cope with this ridiculously bogus and unfair part of healing. But, it still hurts. You find yourself again when you're body is better, but what no one tells you, is that if you've been sick for an extended period of time, that person you've been waiting to meet again quite possibly may have never ditched his or her unsavory character flaws or deep-seeded issues. Fighting the good [sick] fight turns any wimp into a stallion, but if there were things in there like emotional or psychological issues that were never addressed, the person in the mirror looks less like your old self, and much more like a rhinoceros. I'm not sure why I used rhinoceros there, another part of healing is growing back into your brain's comfy cognition. Never mind the slough of issues that had developed while you were sick. So, what's the best way to heal with your bad self while navigating through your new and exciting life?


Let's start with a basic How-To:
[Unfortunately for you, I never tire of these]


Be Up Front
When you can't remember making plans with friends, or even to be in contact with them, or that you were supposed to keep someone's pregnancy a secret, or you forgot your Goddaughter's birthday, or you went ahead and cried into your pizza for no good reason in front of a bunch of townies at a favorite dive bar and totally freaked out your dude, or that you know you'll DEFINITELY not be participating in any of these online challenges, SAMANTHA, be honest with the people around you regarding why. Staying home and crying to your Puffins cereal is VERY okay. Just make sure you're getting the point across that you care. And you know, write things down once in a while. 


Know When to Call It
Think you might be too emotional about seeing people that you used to, or attending a party similar to those before you were sick, or that you're just not feeling a snug sesh with your ladyfriend or fella? Say so. If these people are worth their salt, they'll attempt to practice understanding, and you won't end up in a ball on the floor three hours later, regretting you left your house.


Apologize for Hiding
Remission means an ebb and flow to how comfortable you are around others. Some days, I just can't do much more than lay around and reflect on how different my life has become in the last year, since reaching remission. Yes, I'm sob/laughing and having full-blown conversations with my dog/ pain management specialist. For me, sometimes that's just necessary to getting through those moments. 


Apologize to [and forgive] Yourself
This is your own. 
But I choose Kung Fu and those orange gummies with the terrible sugary coating. 



When You Need Help, GET HELP 
Save us the time here and just do it, please. It'll be spotty, and you'll blow it off because remembering is painful. But the only way through it, is THROUGH it. Personally, I've been exploring what it's like to have never been diagnosed with a fierce case of ADD. Turns out all of those "attempts" at things make a whole lot more sense, and I'll be better for even trying to understand why. Countless apologies and my incessant thoughts of unwished happiness for wonderful occasions, unfinished collaborations, and never-done favors are something that I'd like to extend to so many people that I care about. 


I sometimes want to tell people who I know are sick, that the journey is so much more than reaching the point that I've gotten to. I understand that communicating something like this should, and does, come with such deep feeling for every individual's experience here. Crohn's Disease both ruined, and saved parts of me. I couldn't be the woman I am right now if I never got sick. I don't regret or hold bitterness for my body. Letting go of that has made this journey much lighter, but I am, and will be continuing uphill for probably longer than I'm anticipating or giving credit for. I can't give much more advice on how to move faster or lessen the load, as I'm still figuring it out. I just want anyone else in the same place on the trail to know that they're not alone. 



Wednesday, June 18, 2014

The View From Here


Last week, I got sick. Not the kind of chronically sick that I've written about in the past, but a small flu-like infection. This sort of thing isn't an afterthought for a healthy person. Which is how I initially approached the situation- as a healthy person. Because I am now, right? Wronnnng. I've been feeling so great for so long, that I had totally forgotten that the body of a person with an autoimmune disease can take much longer to heal than one without. This isn't to say that every little cold would turn into a three-month infection- I don't want to scare any sickies here- but prolonged fighting for those of us with chronic illnesses isn't uncommon at all. 

I took some doses of Sudafed and drank copious amounts of juice, but when things didn't get better in a hurry I, for the life of me, couldn't understand why.

I guess I've been busy since I went into Crohn's remission last July. I started school this year. I have multiple jobs now, and still do freelance design. I see friends often and hang out with my dog in the park. This is the year I turn 30, and I want to cram in so much of what I simply couldn't in the last few. It seems though, that I'm always running from one thing to the next. When you've got the kind of disease that comes and goes without warning, you take advantage of your healthier time as best you can. You just do. Unfortunately, attempting to make up for the moments you may have lost could turn into your becoming reckless about your body in it's current state and just bring your ass right back to the hospital that you spent countless hours planning your escape from.

I haven't written a Stale Cabbage post in four months. Recognizing a serious health issue is easy when it's your number one job, every single day, for years. When I was sick, I wanted to share my experiences with people who were lonely and scared, who wanted to know more about their sick partners or friends ailing bodies but were too afraid to do it in person. I wanted to create a network of support for sillies who just didn't want to believe that their lives were different

And then I got better.

I didn't want to pay any more attention to the thing that stole my life. But as I sit here again, laughing and crying, feeling the pull back to what my situation really is- uncertain, enraging, impossible to map out- I feel it's only necessary to keep myself from turning it away. There's a constant haunting in me to keep in mind that at any moment, I could lose everything all over again. Balancing that fear along with the idea that experience, responsibility for myself that not everyone can understand, and the happiness that brings will lead to healing, is exhausting, and excruciating. Because I'll never really know how long I have until it's time to put the armor back on. 

My reasons for going into detail about how difficult this part is are the same as they've been for every other post I've given. If you are trying to balance a normal life with the fear and actual loathing of a chronic illness, I applaud you. Your fearlessness in continuing to live with each heavy thought is brilliant. Remission is a wonderful, and absolutely beautiful thing. But it is also a heart-wrenching and brutal part of our diseases. Please remember to breathe. Remember to stop beating yourself up about what you can't do yet, and start raising your glass for the things you can [Even when that glass is fulla Pedialyte].Take your time, knowing with full faith that you'll not only be able to regain your self when the storm is over, but you'll become something truly unstoppable in being mindful of the beast you now know. Because your time isn't limited- it's just on a different kind of clock.

So sit the fuck down and relax. You've earned it.

Monday, August 5, 2013

Water Wait


I've never been sailing. I imagine racing over the ocean with the strength of the wind behind my schooner [that's a fancy sailing ref for those who care] would be pretty amazing, though. You know how sometimes you feel driven to do something really important? Like some beautiful force has it's hand on the small of your back, willing you to keep sailing until you carry it out?

WAIT.

I'm realizing that maybe some of you don't. I know that for a decent chunk of my life I didn't. It happens. You may spill some mango chutney on your fresh new Sperry's on sailing Sunday, sending you into a tizzy so uncomfy that you fall right off your fancy boat, dickey and all, into the heavy current of the ocean waves.

If you know how to swim, which I do [slowly and as awkwardly as you can imagine], it's not impossible to breast stoke your way to shore again. Or at least to some other sailor's boat for a bit, if that's what you need. I don't know the sailing term for bestest pal, so I'll simply call it "Meg*". That Meg might throw you a towel and giggle with you at pictures of half-naked hipster dudes until you're ready to get dropped off at your own boat again. 
*The name Heather may also apply here. 


When you do finally arrive in a safe place, though... when you are happy with how far you've been able to travel without swim-puking, the feeling is wondrous.
Kiiiinda like this.


There have been few moments in my life that felt as wonderful, but I treasure them and constantly hope for more. The greatest part is that I hadn't even believed I would get to this place. The last three years have been the biggest test I could have had. It didn't take much--just my voice. 

Now that I'm approaching top sailing speed, I don't resent that part of my life at all. I must admit though, that I am just a little nervous. Hence the lingering swim-pukes.

My poor boat shoes.

Thursday, July 25, 2013

Double Agent

Has there ever been a time in your life that you remember living as a version of yourself? 

It's possible that some people may find this difficult to relate to [I'm jealous of and applaud those who do], but when we're going through something tough, sometimes we become so used to motion on autopilot, that we forget how to use our manual controls as the days start to get brighter. 

Years and years of full-of-shit song writers and Etiquette books have told us that we should, "Put on a happy face", "Smile, and the whole world smiles with us", and, "Don't cry on the subway in the middle of the afternoon". I personally think that this is all a load of crap. If you don't express what you feel, you'll end up sitting on it until it leaves a frowny face divot in one of your ass cheeks. Just not cute. Being polite is one thing, you definitely should NOT- under any circumstances- hurt anyone Hulk-style if they get in your way on an off day. However, if you don't let out your sniffles [or if you're a manly man and don't cry- your pent up aggression], faking that happy face can end up... not so much in your favor.

While I was sick, I started putting forth a version of myself that I wanted everyone else to see. Partly because I felt like I had to, and partly because I thought it might help to jump-start a little happiness in my life. Not that I faked any interests, friendships or intentions, but really now, how much of your vulnerable side do you let your semi-close friends see? What if your vulnerability is already all over the internet via Instagram or the dreaded Facebook? You want to be strong, right? You want your pals and acquaintances to have a good feeling when they're around you. And not spend time bogged down feeling bad for you. You want to feel inspiring, and inspired...
I'd better not be the only one guilty of this. 

But you may wake up one day and realize, "HOLY FUCK..." And I can use as many curse words as I want to, because I'm no longer with a publishing network and it feels wonderful, "I've been trying so hard to make everyone think that I'm THE STRONGEST PERSON ALIVE, that I've actually become weaker in the process". 

Let me make myself perfectly fucking clear:
Keeping up with appearances is a total waste of time. 

If you feel like crap, stay home. If your friends are putting together a party and you know you're going to feel anti-social, go to the library instead. Cry alone in your bedroom and line all the pillows you own up to punch in rapid succession. Most of the posts I write are instructional, but here's a secret: I write them for myself. So I can look back on them and take the advice that I listed months, or even years, before. I'll be honest- sometimes it's really fucking hard. I've gone months without writing- or even reading- because I knew that I just wasn't strong enough to address the resentment that I had for getting sick in the first place. The honest truth is that I still struggle with it. It's probably not something that will ever really go away, but I'm getting there. 

And these days, I'm not afraid of letting the world see that.

If you're feeling bat shit cray, or you just want to be negative for a while in your room- DO IT. Don't waste your energy trying to push that down into your super awesome depths. They'll just start rotting away. Explaining the smell to your friends and loved ones and trying to get them to stick around and ignore it is a lot more awkward than losing your strength sometimes and letting it be seen.


You beautiful idiot.



Wednesday, May 1, 2013

If I May


Since it's gotten nicer and nicer outside, and the sun has given me more happiness than I've had in quite some time, I'm in a super excited and silly place. There are so many people wearing flip flops and dresses in the city, so many smiling couples and pups out with families in this awesome weather. It seems as though the fresh breeze is carrying bits of happy around and letting it fall on us just when we each really need it. And it's about damn time.

After the bombing last month during our beloved Boston Marathon, there's been a stillness in the city. People have been unsure of how relaxed to let themselves become. Though we've given a sigh of relief after suspects were caught or killed, we still hurt for what happened... and many people question the tragedy. There are tons of unreliable sources spewing what they think we should believe through the sharing of their websites and photographs. It's maddening. I think we deserve some beautiful freaking weather, and a fresh season.

But there is one absolutely terrifying thing about this month.

May is National Irritable Bowel Disease Awareness Month. That's actually wonderful- far from terrifying. But it's the month that I, along with countless others, was initially diagnosed with Crohn's Disease. The change of seasons can wreak havoc on an autoimmune disease, and many people start to flare when the weather gets nicer. It's a crap shoot, but it's our job to try and find things to be happy about everyday. If we don't, we run the risk of getting sick and becoming super miserable. The positive vibes you give yourself are in direct correlation with how good you feel.

If you've got blood running through your veins, you've got the opportunity to make your time on this planet worth something. Even if you're sick. Especially if you're sick.

Make a plan.
Show your teeth.
Grab happiness by the nape of it's neck, and make it your own.
Sometimes even a well-deserved, gorgeous new start is scary. The truth is, people with a lifetime sickness never stop working. Ever. Being on your toes is something that becomes second nature, but can hurt... so we've got to make sure that we're well-rounded in our activity, knowledgeable of our conditions, and willing to sacrifice a lot of things that mean very much to us. At least, for the next few months anyway, we can fight, fight, fight with our toes in the sand and our faces in the sunlight.

You can turn a shitty situation into an opportunity to help others. And to help yourself.
Every moment is what you make it. 
Don't ever let a doctor tell you otherwise.




Thursday, March 21, 2013

Still Stones And Moss

Wonderful things seem to be happening all around me. Friends are having babies, second babies, great career opportunities, and finding tremendous strength in climbing even further from each new and beautiful place that they reach. 

They're wonderful! All of them! And they inspire me all the time.

They're rolling stones, and continue to be moss-free in most of their endeavors because they have the happy attitudes that allow themselves, no matter what, to keep going. Once you get a taste of something good, your drive pushes you to go grab seconds, am I right??

What about the other type of friends though, those stones that seems to sit still and gather inch after inch of soggy moss until it weighs them down completely? I've compiled a list of some sure fire ways to get those lovely little stones rolling again, and on the way to higher hopes. With much personal research, my little Gloomies, these pointers are for you.


Carry your Own Baggage
I'm fully aware that the camera equipment at my feet in this picture does not belong to me, 
but that doesn't mean that I don't know how heavy it is. That said, they still don't outweigh
 my history.

Part of finding your true self and becoming an adult on this planet is recognizing that if you spew your unwanted junk everywhere, no one will want to be around you. There's just got to be fair amounts of give and take, talking and listening. It's always healthy to vent, but solving your own problems will make you an amazingly tough person. And don't sell yourself short, you probably already make a great therapist to the people closest to you. 


Enjoy The Climb
Even grimy, smelly stairs get you somewhere. Shut up and know that every step you take is
going to bring you out into the sunshine again, and taking a look around in the muck can also
be kind of fun. 


Celebrate [Without Taking Advantage Of] Friendships
This is an important one. The ones that I talked about venting to up there, the few that listen and love you unconditionally? Those chums are to be held in very high regard. Be careful that the tear-fests you give them aren't wearing down their faith in you to become super happy [and fun to be around] again. Try to remember that just as getting worked up and being sad is exhausting, so is listening to you getting worked up and sad. At the very least, bring those idiots some cookies in exchange for putting up with your snot-stained sleeves.


Fuck 'Em If They Can't Take A Joke
This is just as important. Not everyone is cut out to be as sympathetic to what you're going though as you'd like. This will never change. Your soul-bearing is extremely overwhelming to some, so be respectful when you might not get the reactions you're looking for. Put your feelers out for who to speak to about your issues, whether you're healing, going through a break-up and can't stop talking about it, or are at your wit's end about a job you hate. A lot of people are [gasp!] generally happy all of the time. Don't rain on parades because you're too wrapped up in yourself. On the other hand-- if you genuinely feel as though you've been wronged or personally victimized by someone who doesn't understand you, don't get upset. Just walk away. In the long run, if they aren't close enough to you to really be able to care, it doesn't matter what they think. Do not hold this against them, just let it go.

Recognize A Greater Power

I don't care what you grew up believing, it's been proven that having faith in a higher power helps to alleviate stress and combat illness. Could it be that the Universe hears you when you're down and out and sends you healing relationships and sunshine? I frigging hope so, because I've been banking on that for a long ass time. Believing in something creates a sense of belonging. A sense of belonging leads to connection with others who share similar beliefs. Human connection can change your entire way of thinking. Freaking start believing that something's pushing you along this rock, already. Even if it's science based.


Know Your Limits
Ooh, you sure look like an asshole in that deep V. No, really. Aside from fashion sense and courageous idea sharing, it isn't okay to do more than you think you should. Even the healthiest person can easily burn out when there's too much going on. I'm talking to everyone here, not just the sickies.


Grow Up
Really? You still haven't filed your taxes? From last year?? Get it together, flapjack. You don't have time to screw around anymore. Your thoughts should be on how to better yourself every day. Go get a notebook, and write down 5 things to do next week that you've been putting off because you haven't felt like doing them, and do them... Then, do it all over again.


Note Accomplishments, Big & Small
How the hell else are you going recognize how you operate? Reward yourself with some praise and feel happy about something you've just done, even if it may be small to someone else. Let others who are close to you know when you're proud of something you've finished, or a new idea you have. Make them happy about believing in their accomplishments, too! 


Treat Yo'Self
Shooot. I like pink and red nail polish. I probably have three of the same shade. It makes
me feel GOOD. What is something that perks you up when you're feeling blue??


Create Your Own Timeline
Moving fast is for race car drivers and downhill skiers. Unless you love speed, and I don't 
mean the movie about the bus, take it slowly. Do what you can, and don't stress about your 
pace. You'll be even more proud of the things you do when you time them right.

Be Logical

My favorite Vulcan would point out when you're being an idiot. Are you willing to do that for yourself? If not, scroll up and read this whole damn post again. Being honest with yourself is one of the most valuable things you can do. If, deep down, you know that something's off, take a step back and rethink what you've got going on. Progress takes time. I've wanted some things in my life to work out soo badly that I've compromised my health to try and grab them. It wasn't worth it, and neither is your rushing something that shouldn't be rushed. Life isn't an Easy Bake Oven. If those brownies aren't ready, they'll give you the shits.


Happy Thursday. Spring is here!

Tuesday, November 13, 2012

You've Come A Long Way, Baby

Stale Cabbage is my baby. 
This is our 200th post.

It may have taken a while to get here [almost two years!], but I couldn't be happier with the progress. Through this blog I've been able to talk about everything that I've discovered within myself, learned about the amazing city that I live in and am inspired by everyday, and all that I've endured through Crohn's therapy. 

Thanks for listening to all of my crap. 

With great friends and family, strong faith, and a little luck...

 I battled through a sickness that almost killed me.


And I talked about it with anyone who would listen.
[Sorry & Thanks.]

Because of that sickness, I developed a better relationship with food.

I started a group for other people in Boston and surrounding areas with 
Crohn's Disease and Ulcerative Colitis who can't eat pizza on the reg. The rest of you really piss me off.


I stopped to listen, absorbing everything that I could from amazing and influential people.


And I learned that networking isn't such a scary thing. 
Put yourself out there, you'll be super happy you did.

I discovered what a great friend I truly have in my Mama.
[truly.]

I lost my apartment, jobs, and most of my friends when I got sick.

I also found that I could turn that around, and felt warmth in rebuilding what was taken.


I launched what I hope to someday call an amazing career.
[first type.]



I'm still learning to drive cars with manual transmissions.
[Hey, we're not all perfect]

I met the love of my life.

I think he even saved it once or twice.

And I continue to learn patience and understanding as I watch him on the road.
[Some new pals don't hurt during these times, either...]

 It takes an immeasurable amount of dedication to keep sane and happy after nearly coming back from the dead. I don't generally pride myself in stick-to-it-iveness, but after knowing the courage it takes to pull yourself together the way I've had to, I'm proud of my ideas, powerful emotion, and strength of character. Illness isn't something that many people understand, and I wouldn't blame most of you if you didn't think as highly as I do about the things that I've done. But I will say this: Most people are walking around with something you'll never relate to, that you're heart will never, ever touch.

Practice understanding, mindfulness, and relentless respect for those around you. The relationships that we create in this life are golden. Caring for others, even in moments when all you want to do is throw a microwave in their direction, is absolutely imperative. 

I can go on and say that without everyone I know, I wouldn't have been able to find remission and stability in my life. But... I'd be lying. The people that I love have helped me [a great, great deal], but if I didn't learn to love myself, I would still be lightyears behind. Heaps of that discovery came as I wrote this blog. Post by post, I continued to learn more about myself. I also got a free, first-look at how I fair at practicing what I preach. For other sick people, I cannot say these next few lines enough- Spend time learning yourself. Take advantage of your down time by learning everything you can about what ails you. Talk to family and friends to make sure that they're on the know about what's going on with you, and never, EVER be afraid to ask questions within your medical community. You ARE one of your doctors. 

After realizing that what you know can save your life, you'll never want to stop learning. That curiosity will continue for the rest of your life- if you're lucky. Don't push your body away.

It's your best friend.

I love mine.

I hope you love yours, too.

Monday, September 24, 2012

Acting Your Shoe Size Can Save Your Life

There are advantages to staying silly. It's been one trait that I'm happy I held onto since my childhood. As adults, we find ourselves obligated to deal with more and more grown-up crap that we hadn't expected. I guess I've always wondered, 'Why keep it difficult?'. Goofing around can lighten any situation, you've just got to know the line that divides silly from disrespectful.

Keeping a silly composition helps immeasurably when you're forced to face what scares you. I haven't seen these videos below since Steve and I took them last year before and after a colonoscopy, during the most intense flare of my life. I like to think that it was this attitude that kept me fighting, kept those around me fighting, and brought me to where I am now. Closer to remission than I have been in over two and a half years.



We've come a long way, Steven.
And we haven't stopped giggling yet.

Thank you for keeping that cute lil' smile on your face, when you were just as afraid as I was. 


Saturday, September 1, 2012

An [Almost] Epic Fail

Here's a little story about something serious that can happen in your relationship when you're living with a chronic disease. 

For so long, all that I knew was my sickness. I had no choice but to put other serious issues that I'd been working out for myself on the back burner. I journeyed far and wide through Relationship Land, and was just getting the hang of actually knowing myself as a single and independent person when I got sick.  

When you watch as the people in your life that you gave your everything to, those individuals being deserving of it or not, take a big dump on your kind and genuine nature, you become broken. You start believing that you aren't worth what you're trying to give in relationships, so you give more. Even when you shouldn't. I call this... the Give Give Monster, and it can also come a-running if you start to feel guilt for something [say, having a disease that you can't cure and receiving limitless care from someone you feel you'll never be able to repay]. GGM began rearing it's ugly head as I became closer to remission this year. Steven had dutifully taken care of me at my worst, and never uttered a word about how unhappy my sad and frustrated behavior, not to mention terrifying hospital stays, had made him feel throughout my treatment. It's only now that his resentment about the painful feelings he had harbored for so long is surfacing. And I find myself wanting to give up countless pieces of myself for our relationship as emotional pay back. 

What he's feeling is so normal, it's scary. He's lived with my disease, too. And I suppose a part of me might  always feel like I 'owe him'. Finding out how to heal together while healing separately is a must. 

Our Crohn's war had almost split us.

Almost.
We've done it before, we can do it again. 

For couples who hope to stay together through a struggle as tough as the one we've known, I recommend a healthy dose of relationship therapy. There's not a damn thing wrong with knowing what you want, and doing everything you can to keep it. I started therapy earlier this year, and Steven and I will soon be going together. If you know that you've found the love of your life, you should fight for it with everything you've got. Just make sure that GGM doesn't put a damper on the joy that you deserve for yourself. Right now, my partner needs me to be strong, just like he was. And I intend to be there for him like I wasn't able to before.

Not because I owe him. Because I love him.


Thursday, August 9, 2012

Shut Up And Be Driven

If you have the opportunity to work with something that you love, you should, right? However, that opportunity will almost never simply present itself, so working to get to that point is super imperative. Most people don't understand what it feels like to work toward a goal while simultaneously working through a sickness. I absolutely think that failing to put the effort in for something that you love is a sickness. 

When you're suffering, for any reason, the last thing that you want to think about is how you can better yourself. When I was super sick, I started writing things down that I wanted to change about myself when I got better. This included tiny things like remembering to shut off lights when I walked out of a room, or to get dressed everyday [even when I knew I'd be too weak to go anywhere]. Of course there were days when I stopped caring about the future, about anything I'd have to put work into. I was miserable. But I knew that the day would come when I would be happy to hustle.

That day is finally here. I'm peddling my ass all over town trying to find work, and I'm starving for it. I honestly thought that I might never have gotten better. On those days that I get brave enough to  remember thinking I was close to death, I appreciate everything in my life. All you need is some serious commitment to your craft, confidence, networking skills, with the ability to accept any criticism, and boom- you're on the right track. Staying humble is something that I have seen in some pretty amazing artists who are making livings of their craft, and that's how you can become so beautifully seasoned. Listening, and not being afraid to expose yourself are really important skills in this business. Don't get me wrong, it seems as though I'm discouraged about something [literally] every day. But what knocks you down a peg should only help you to work that much harder in trekking your path.

Got a pebble or two in your shoe? Take them out and decorate them. 
Then sell them. Just don't stop your life-hike because you're a little sweaty and you cut your leg on a branch that someone forgot to clear for you.

No one will ever clear the entire way. And why should they?

Pull up your socks, pack some sammies, and get 
your ass up that trail.


Friday, July 13, 2012

Long Time No Squeak

I've grown away from this blog. I'm not proud of it, but lately it just seems depressing to me to post anything that could be Crohn's-related. The truth is, I've been focusing so much attention on trying to work, that I've been straight up ignoring my body.

Stupid. I started writing Stale Cabbage to have something to look back on in times of weakness. To remind myself how hard I've worked to accomplish not only finding peace with my disease, but finding peace within myself. So here's the deal, Alicia. listen up.

Just because you have more energy than you did a month ago, doesn't mean that you're any closer to remission. You know damn well that when a flare comes, it starts to brew long before there are any tell tale signs. Are you seriously thinking that ignoring the teeny red flags of your irresponsible dietary actions will keep your sickness at bay? Come on. You also don't want to realize that taking it easy isn't just something that most people wish that they could do- it's imperative for you. Man up. Take responsibility for that little body, because you haven't gotten it back to one hundred percent yet. That doesn't mean that it's okay for you to sit on your ass, either. I want you churning out more drawings than you know what to do with, making connections left and right, and organizing what to sell, how to sell it, and closing every deal that you can.
Then, I want you to blog about it.

~~~~~~~~~~~~~~~~~~~~~~~~~
When you're scared of something, you tend to want to ignore it. People put things off all the time because they're afraid the outcome will be different from what they expect. I guess showing courage in situations that you don't want to recognize is something that few people are actually able to do. I also suppose that when faced with that very dilemma, I've been a mouse. You know, you're either a man or a mouse, right? But let me tell you a little something about mice. They're smart. They may run into a wall the first couple of times they try to find their way out of some shit-- but when they know what they're doing, they show up again with a greater strength. And an army to back them up.

I think that I am ready to spend more time thinking about what I need to do to make things right with my bod. I've started to resent it for everything that I've been through, and recently- I've been feeling not so great. I've been taking that out on the people that are closest to me, and I feel retched. For that, I am so, SO deeply apologetic.

So pals, mind doing me a solid? Tell me when you think I'm being an idiot when it comes to food, rest, and alcohol. I may squeak like hell for a bit, but I promise I'll share the good cheese with you... you know, when I can truly stomach it again.


Wednesday, May 30, 2012

It's Okay Not To Be Okay

To Whom It May Concern:


It's come to my attention that I am unbearably, and undeniably, unhappy. There have been few things lately that make me feel as though I have something to be proud of myself for. After spending so much time wondering what things would be like if I'd ever come out of so many terrifying Crohn's flare moments, it's almost gotten old for me to try for it.  Pieces of me sort of don't even care anymore. Small things that made me so happy seem so difficult to do. Objects are heavy. My body doesn't work like it used to. People are at such faster paces than I am. I don't speak when I'd like to. I resent anyone and everyone for what their abilities are that mine don't- and won't- hold a candle to. I think that I've actually started to hate things. 


I'm writing about this because I should. Because when you're this down, but you still have hundreds of reasons to be happy, you should let your feelings out in words that will prove to benefit you when you decide to read them back to yourself. To say to that sad, weak you, 'So you started over and it was a hell of a lot harder than you thought it was going to be. What are you crying about? You're alive'. I've learned a great deal about myself by exercising this method of therapy. Though I still harbor ill feelings about a lot of people, things, and situations -most of which, do not deserve my shitty judgement. 

I know how hard building my life is going to be. I get small tastes of it everyday. There really is no greater struggle than a struggle within yourself. I'm incredibly angry about what's happened to me. I want to find someone to blame. I want to blame everyone. I'm finally ready for my body to start feeling better, but I forgot how much it used to do. I can't even ride a bike yet. It will take me, I don't know how long, to even get up a hill. I guess I know one thing- after all the peddling I'm about to do, the breeze at the top better feel fucking amazing.


Rant over.


Will someone come over with cookies now?


Monday, May 28, 2012

Mind Full-Ness

Growing into adulthood is a lot harder than I thought it would be. So is deciding just how to use my energy as I do so. There are a shit ton of things in our lives that take a great deal of time and umph, but the key is knowing when to let those situations get you worked up, and when to blow them off the way you would a final exam that you're exempt from after acing the course all semester.
I am imagining that to be a pretty great feeling, but I mostly always blew the course off all semester and wound up cramming for a final that I wasn't at all ready for. 
Getting back to my point, I am studying mindfulness. 


Mindfulness is a concept in Buddhist Meditation that's been applied to psychiatry in Western medicine. It brings a kind of nonelaborative, nonjudgmental, present-centered awareness in which each thought, feeling, or sensation that arises in the attentional field is acknowledged and accepted as it is. [Thanks, Wikipedia.] I have been talking with my therapist lately about keeping my spirits at a stabilized place, higher than they've been during my recent health complications. Having an awareness of what's happening to you without freaking out can actually help you to get through what ails you in a wonderful way. Having mindfulness of problems means understanding them, and moving on to what can be done to better your reaction to those problems. This will allow you to rest a little easier. I'm recognizing what needs to be stressed about, and what really doesn't. And I'm tackling those things one at a time.
I have oodles of help from my number one healer.


What I am finding tough, is having so many things to recognize. I'm full to the brim with worry about my condition. I assume that after being sick for such a long time, any person will start to think that their body will always crap out on them. Crap. Ha. Still, knowing what you feel will help you start to recognize what will change those feelings for the better. So I guess I'll just keep the silly factor up until I can break down the list of worries one by one and tackle them individually. My mind's full- but that doesn't mean that I can't start breaking down the big woes.


Like figuring out what to get my Shaman for the holidays that will make up for all of that incredible bedside manner.


I'm pretty aware of the need to start a job hunt.

LinkWithin

Related Posts Plugin for WordPress, Blogger...